Tuesday, September 15, 2015

CF Blog, slightly delayed.

Well Here I am. Doing treatments again.

My day began as this whole month should; waking up later than I'd like. Put the water on for a pot of tea and then set about the tedium of doing Pulmazyme / waiting / 7% hypertonic Saline / waiting and now at Noon-thirty doing my Tobi ( no waiting after that ).

I'm not a morning person.
The fact our house has an espresso machine is a great boon to my adventures. 
Soon I will have a 3Lt Water heater too, ( need to get a new pump for it ) and it's good to go.
I'm pretty much doomed to never wake up "in the morning" though I'm largely okay with this one.

My lungs are being a little suck, nothing worthy of extra medication but I need to get out more and do as much hard work as I can. Right now the slight reduction in lung capacity is slowing me a tad and pulling down on my ability work and make pay. 

I really enjoy using my vest machine while I do breathing treatments, also vesting while I either sing or play tanks / planes / ships. Or calling friends to chat while I'm vesting. 

In other news: I'm starting to take videos of my cooking adventures for people with a taste for new and experimental food stuffs.

I have somehow gone almost a year since my last clinic visit, which is weird since I usually go every three months like the most of us.

Three hours every day for a month I'm just sitting here watching Netflix, doing a little writing and playing some games. 

I need more work, and better health.

That's it from the CF post for now.
Hope you are all well too.

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